Thank you for creating such a beautiful book that has brought comfort to many families struggling with chronic intracranial hypertension. One of the scariest situations for any child is to see a parent ill; you’ve been able to transform your own family’s experiences into Caitlin’s Wish, a gently reassuring book that is full of hope.
Vicki, thank you so much for your support and your efforts to raise awareness of chronic IH. Most people with this painful illness suffer in silence, because so few know about it. As a committed, passionate IHRF volunteer, you have made it your mission to raise awareness of chronic IH and help improve the lives of people impacted by this life-altering disorder.
If we could choose one word to describe Vicki, it would be “hopeful”. (Of course, a second word might be “patience” since she displays lots of it when the Skype connection
occasionally drops during our monthly online volunteer meetings!)
Christopher Reeve once said, “Once you choose hope, anything is possible.” Vicki is living proof of that idea.
Congratulations again, Vicki, and thank you so much, on behalf of the Intracranial Hypertension Research Foundation, our family and all families who are searching for answers for their loved ones with chronic IH.
Emanuel, Amy and Jessica Tanne
Intracranial Hypertension Research Foundation