Rare Disease Day is celebrated every February 28th to raise awareness of the many rare diseases that change lives throughout the world. My husband was diagnosed with the rare brain condition IIH (Idiopathic Intracranial Hypertension) in 2003, and I've volunteered with the IH Research Foundation since 2009, raising awareness of IIH online. So, Rare Disease... Continue Reading →
https://www.slideshare.net/VTaylorAuthor/young-carers-awareness-presentation-by-victoria-lewin https://www.slideshare.net/VTaylorAuthor/what-is-ih-and-how-does-it-affect-families https://youtu.be/pDPSE_jV17o Further Young carers awareness Resources http://whocares4us.wixsite.com/website http://www.victoria-lewin.com https://www.facebook.com/CaitlinsWishOfficial/ https://carers.org http://aacy.org http://www.youngcarers.net.au It’s thanks to Professor Saul Becker that Young carers get the recognition and support that they do… here he talks about the past 25 years and the journey he took to make young carers lives easier.
Who cares 4 us? is a series of books for schools.... wherever you are in the world! The series covers Young Carers Awareness, Disability Awareness and anti-bullying too, as 2/3 of young carers are bullied in schools! So why create this series? All children have the right to an education, to go to school,... Continue Reading →
Caitlin's wish is a magical fairytale for young carers, created to re-assure them that they're not alone. It follows little Caitlin on her journey to understanding all the changes that are happening around her, after her Dad becomes poorly with a long term illness. Families who care for a loved one with IH will find... Continue Reading →
A Young Carer is a child / young person under the age of 18, who helps to look after a family member or friend who has a long term illness, disability, or misuses drugs or alcohol. What is a Young Adult Carer? A Young Adult Carer is a young person between the age of... Continue Reading →
This book has been especially created for children who have a family member with the rare brain condition IH or IIH. It's the book I wish we'd had 15 years ago when my husband was diagnosed with IH and our children were only 5 and 2! It's full of stories, games, advice and ideas to... Continue Reading →